Home  >  News  >  Michael's Story

Michael's Story

Michael's Story

Michael, 32, renal patient

Michael’s renal journey began after he picked up a fungal infection on his hands. He had blood tests at the doctors and was told he had under 20% kidney function. He had just turned 30 years old. At the time Michael was 35 stone. Michael has a partner, a four year old daughter and a baby boy on the way.

Michael says:

“In January 2018 I started going off food; getting confused; I couldn’t move my muscles properly; really hot then really cold; I felt like I was going to die.”

“I went into hospital 3 times; the first two times they said my levels were fine but my kidney function was reducing as the weeks went by. The third time, I was tested again and they said I needed to start dialysis. They took me to the renal ward and made an incision on my chest and then the next day I started dialysis. That was January 2018. I have been on dialysis 4 times per week ever since.”

“My current goal is to lose weight as I’m currently not able to go on the donor list due to my weight. My weight is now 180kg and my goal is 160kg. When I started dialysis I was motivated to get off of it as quickly as possible, then I slumped and lost momentum. I have at least another 10 stone weight loss to go. Working with the dietician helps as even the small changes I have made have helped with the weight loss.”

‘I don’t want to be stuck in here forever; I have a baby son coming soon, he’s due in September.’

“I really feel like I’m missing out on things. I don’t get to feel my son kicking, I don’t get to spend as much time with my daughter. I used to go to America once per year as my dad lives over there, but I can’t now. I would also love go to Europe with friends but I can’t do that anymore. I do trips to Butlin’s but I would rather be in Spain.”

“I’m determined to get my life back. My kids and partner are my determination but I need direction. You do make friends in here, there is a lady called Doris and I call her Auntie. But dialysis is so draining. I have to come here whether I’m ill or not and emotionally stable or not. My sister and mum understand as they work in the NHS. My partner, she worries.”

“Moving to the Courtyard Clinic would make a big difference. It would be a settled place to go to, this is a truck. I’m here so much, this is like a second home, it would be nice if it felt a bit more homely. I’d like to do a college course; make use of the time. If I’m going to sit here I might as well do something constructive. When I’m able to work again I don’t want to be totally out of the game.”

Website by Adept